TeleRare Health announced its launch to offer virtual care appointments for individuals with rare diseases, focusing on diagnosis, disease assessment and ongoing care.
The platform connects patients with expert clinicians and offers molecular diagnostics, as well as care coordination and referral services. It also provides information on approved therapies for rare diseases and patient advocacy...
Scrolling through Dr. Nadia Chaudhri’s Twitter feed, her more than 150,000 followers could see a small window of her life with terminal ovarian cancer: a sun-lit photo of her son eating a mango, a funny tweet about the heart-shaped sticker used to prevent bedsores, the much-retweeted thread from September chronicling her symptoms and eventual diagnosis.
Chaudhri, a neuroscientist and professor...
AllStripes, a platform that helps patients share their medical data for research on rare diseases, announced it had raised $50 million in Series B financing.
The round was led by current investor Lux Capital, with participation from AZZ Venture Partners, Spark Capital, Medidata Solutions, McKesson Ventures and Maveron. Angel investors include Arif Nathoo, CEO of Komodo Health, and Leila Zegna,...
When Eleanor was a baby, she had an itch, one that was so severe she couldn’t sleep, and no matter how many times she scratched it wouldn’t let up. Doctors told her mother, Claire Brinkley, a cuddle would only make the itching worse, leaving her helpless, she said.
“She learned to scratch herself until she bled, and pick at the wounds and gouge at them because nothing about gave her any relief....
Paul Wicks is a scientific advisor for digital health company Ada Health. At Ada, Paul works on strategy, rare diseases and scientific communications. A rare diseases expert, Paul is a neuropsychologist and independent consultant for digital health, clinical trials, and patient centricity. Previously, he spent 13 years leading the R&D team at PatientsLikeMe, an online community for over 700,...
Health tech firm Healx, which specialises in treatments for rare diseases, has raised $56m (£43.4m) in a Series B financing round led by European VC firm Atomico and joined by Intel Capital, Global Brain and btov Partners.
All previous investors, including Balderton Capital, Amadeus Capital Partners, and Jonathan Milner also participated in the round. The funding follows a $10m Series A round in...
A year after Microsoft, Takeda and Eurordis announced that they were teaming up on an innovation initiative to solve the issue of diagnosing children with rare diseases, the partners have unveiled an actionable recommendation report and three new digital health pilots.
“The too often long road to diagnosis presents one of the greatest challenges affecting the health, survival, well-being and...
This morning London-based data platform Raremark announced that it landed $3.9 million (£3 million) in a funding round led by AlbionVC and Ananda Ventures, with participation from Oltre Ventures and Cass Entrepreneurship Fund. The platform, which focuses on rare diseases, plans on using the new money to build a patient engagement and data analysis tool.
The company engages with both patients and...
RDMD, a Bay Area startup leveraging personal health records to accelerate clinical research of rare diseases, has raised $3 million in seed funding. Support for the company was led by Lux Capital, with participation from Village Global, First Round’s Healthcare Co-Op, Garuda, Shasta Ventures, and other unnamed angel investors.
According to the announcement, the new funding will be directed toward...
Online health network PatientsLikeMe is teaming up with rare disease-focused Shire Pharmaceuticals to develop digital communities and create research opportunities for people with highly specialized, often underserved conditions.
Treatment and study of rare diseases is challenging for many reasons. For one, patient populations are small and spread out around the world, and many may not have...
